Asking For Help

Nic, Josi, Grace and Noah together with their immediate families and a few very close friends met with the Children's Hospital transplant team this week.  We learned of the kidneys functions, the medications that Noah is on and the wonderful care that Nic and Josi have given Noah to get him to this point.  We also learned that Noah, at end stage kidney disease, is in need of a transplant soon.

Noah's blood type is B.

A donor with blood type B or O is needed who is ideally between the ages of 24 and 35.  A list of nine potential donors is needed for evaluation by the transplant team.

Several family members and close friends have graciously offered to be donors.  For that we are eternally thankful.  To share a part of one's body to give this beautiful boy life is an extraordinary gesture. If you would like to be placed on the list, please contact Nic and Josi Wyman or a family member.

Thank you.

Captain Noah Noah

At just over fourteen months old, Noah is about to begin his journey to conquer kidney disease.  Noah and the Wyman, Smith and Lacosse families will travel to Children's Hospital in Boston next week to meet the transplant team.  Soon after, we hope to find a donor and prepare for next steps.  Please keep Noah and his family in your prayers.

Good Progress!

Noah is steadily gaining weight and his doctors are very pleased with his progress.  Once again, his medications required adjusting, but he is still doing great.  Noah will be going back to Children's Hospital in Boston again next week.

Making Progress!

Noah continues to progress and his labs are doing so well that he got to skip a weekly trip to Children's hospital.  Noah now weighs 8.2 pounds and is still monitored by a visiting nurse.
Yay Noah!

No more feeding tube!

Last week, Noah made progress with the removal of his Nasogastric intubation tube. Also known as a feeding tube, extending from his nose into his stomach and providing additional nutrition other than from a bottle.

This is a big step for Noah, and certainly will make him more comfortable.

Noah has become a great traveler on his weekly trips to Children's Hospital in Boston, sleeping all the way there and back!

An overwhelming show of support!

A fundraiser was held Saturday evening, January 17th at the Eagles in Shelburne Falls to support Noah and family.  Ninety eight friends, friends of friends and family members painted a beautiful wooded scene and contributed to raffles and prizes.

A heartfelt thank you to everyone who organized, donated, painted and observed this overwhelming show of support.  Our hearts are touched by your kindness and generosity.

First trip back to Children's

Noah had his first return appointment back to Children's Hospital in Boston today and the staff is impressed with his progress.  After some blood work they adjusted his medication.

He continues to be monitored at home and in Boston.

Home!

We are so happy to report that due to Noah's potassium and creatinine levels lowering, we were able to leave Children's Hospital and the Yawkey Family Inn and go home to Turners Falls, MA!

Noah still has his feeding tube and will require constant monitoring and decanting of his food. He will also be scheduled for a weekly Children's Hospital visit and two local weekly pediatrician appointments to monitor his progress.

This is the most amazing New Years gift and much more than we ever had expected!  2015 is full of hope for our family.

Thanks again for your continued support!

Progress!

Noah's potassium, sodium and creatinine levels, all related to kidney functions, have been slowly improving!  Any food that he takes in must be decanted and he is being closely monitored here at Children's Hospital.

Progress!

In the meantime, Grace is doing a great job of welcoming her baby brother Noah.

Full Recovery

On Christmas night, Noah had difficulty digesting and keeping food in his stomach.  After an ultrasound, he was diagnosed as having Pyloric Stenosis, a common problem that occurs in early infancy when the passage from the stomach to the small intestine becomes blocked.

Noah underwent surgery yesterday and is doing fine in his room at Children's Hospital.

Christmas at Children's Hospital

Christmas day came and we all realized that family is the greatest gift.  It was wonderful to spend the morning with Grace and Noah at Children's Hospital with grandparents Jon and Jill Wyman and Sue Lacosse and aunts Kate and Mikayla.

Thanks to everyone for your prayers and generosity this holiday season.
 

Our first blog worthy event!

Noah is doing well enough to move up to the 10th floor of Children's Hospital!  He will still have constant monitoring and a very strict diet but this is great news all around!  This means that Josi or Nic will be able to spend the night with him, and sister Grace will have much more space to visit and play! 

Thank you for all your thoughts and prayers and we will keep you posted as updates come! 

Nic, Josi, Grace and Noah

P. S.  Noah is excited! 

NOAH NICHOLAS WYMAN was born at 8:34 pm on December 11th, 2014 to Josephine and Nicholas Wyman at Brigham and Women's Hospital, Boston.  Noah's big sister Grace, age 1 11/12ths could not wait to meet him after months of preparation for Noah's delivery.

It has been understood through weekly ultrasounds prior to Noah's childbirth that Noah's kidneys were not present or forming as they should.  A plan was made to deliver Noah at Brigham and Woman's Hospital and to provide treatment at Children's Hospital, including possible dialysis and a kidney transplant to help in Noah's well being.

Nic, Josi and Grace, along with Josi's sister Kate have moved to the Yawkey Family Inn in Brookline, to be close to Noah while he is cared for at the Neonatal Intensive Care Unit (NICU) at nearby Children's Hospital.

Currently, Noah is diagnosed as having Kidney Disease - chronic kidney failure, stage 5 requiring a kidney transplant at approximately age one.  Noah is being monitored by the staff of the NICU to determine whether he will require dialysis.

Nic, Josi, Grace and Kate are focused on giving Noah the best chance possible as he grows to the point of a kidney transplant.  Moving to Boston and with both of them out of work, it will be difficult to make ends meet.

A fund has been set up to support the family through this time.  Thanks to all who have expressed caring and generosity while Noah and family work through his beginning years.  Your prayers and assistance are gratefully appreciated!

Nic, Josi, Grace and Kate are located at:

The Yawkey Family Inn
Room 24
241 Kent Street
Brookline, MA  02446

Noah's Boston Fund